Fundraiser for Sarah & Danny
Today, I want to ask all of you for some help. Last spring, my friend Sarah guest posted her son Danny’s diagnosis story. Danny is a few months older than Baby J and is severely affected by Marfan...
View ArticleDanny Fundraising Update!
I wanted to take a moment to update you on our efforts to fundraise for Danny and his mom Sarah. Thank you so much to everyone who has donated so far! As you may remember, our goal was to raise …...
View ArticlePlease Help the NMF Win $250!
Regular readers know that the National Marfan Foundation (NMF) is a cause very close to my heart. I’ve learned about the opportunity to help them win $250 and I’m hoping you will take a moment out of...
View ArticleRunning for Marfan
Recently, the National Marfan Foundation has started a fundraising initiative using marathons. We call it Team Heart and Soul. Team members fundraise as a condition of being on the team, while then...
View ArticleCross the Finish Line for Caroline
My fried Jennie asked me to help spread the word about her upcoming fundraiser, Cross the Finish Line for Caroline. Jennie’s daughter, Caroline, has Loeys-Dietz syndrome (a sort of genetic “cousin” to...
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